Dr. Appointment

The Echo cardiogram went fine. Gray's heart is well, all organs are in place, and his diaphragm is in tact. PRAISE GOD!!! His stomach is a little smaller than Dr. Gonzalez felt it should be, so I have an appointment scheduled in 6 weeks (I'll be 28 weeks by then). The Dr. will check my amniotic fluid again. While the level is fine right now, if - in 6 weeks - I have an excess, something could be wrong with the connection from his mouth to his stomach meaning Gray is not eating and swallowing like he should or could be. However, if there is a problem, the nurse assured me it's definitely something fixable and nothing like what we've gone through before. I was so grateful to hear her say those words. When I talked to Travis about it, he said Gray just has the problem Travis once had - a small stomach that fills up easily. HA! Retha went with me to the appointment and quickly pointed out (and made my day by telling the doctor) he takes after me by having a small stomach... :) My tummy feels anything but small right now, but I appreciate her saying it!

Please pray his stomach will continue to grow, my fluids will stay normal and that there is no problems with his "gulps" as the Dr. like to call them.

Thank you so much for all of your prayers and notes of care and concern.

Leigh

Fetal Maternal MedicineDoctor Appt.

Travis and I just got back from the lengthy and thorough doctor's appointment. We got to see everything imaginable about Gray! He held up his hand to his face - sucking on his arms and thumb - almost the whole time!! Dr. Gonzalez said he saw no signs of a diaphragmatic hernia or anything else substantial. However, while he wasn't alarmed by this, he was disappointed he didn't see his stomach fill up. While his bladder was full, Gray never emptied it while we were there.

Because he wants to see us again, we are scheduled to go back to see Dr. Gonzalez next Thursday at 1pm. Please pray Gray (while we are there) will decide to fill his tummy up and empty it before our eyes!!! Dr. G said we could've just caught him at a time he was playing rather than eating. (Amy and Melanie, you'll love this -) I asked if I should eat breakfast or something before I came to the appointment. I wondered if that would matter because, if y'all can believe this, I had not done so this morning. Unfortunately, he said it wouldn't make a difference.

While we are at the appointment next week, he'll also do a more complete Echo cardiogram on Gray because of Grayton's CDH. Although his heart looked fine, Dr. G wanted to see it again at 22 weeks. I didn't really understand why, but after having an undiagnosed defect, I'll do anything to rule out complications.

Gray is in the 62% weight (weight about 15 oz.) and is measuring on target. He was really moving around for the tech and kept flipping side to side.

While I'm a little disheartened we didn't get a complete"clean bill of health", we all know it could be so much worse. The next 7 days are going to go by very slowly.....

Leigh

Grayton's celebration was wonderful!!! Travis and I were overwhelmed (in such a great way!) at the generosity of our friends and family. We donated to the NICU, at Children's Hospital of Birmingham in Grayton's memory,at least 75 pairs of booties, 26 tubes of Bodreaux's, 34 hats and 69 receiving blankets. Plus, there was over $500 worth of gift cards donated! Our hope is CDH babies will be "dressed and outfitted" for the next decade!!



Everyone was so, so sweet to send things for the babies, as well as spend their Saturday making Chandeliers for the isolets! A special thank you to Brandy, Brooke, Sonia and Retha for hosting the special, special day! It was truly amazing....and....I didn't cry all day!! Definitely a feat in itself!



The NICU has a new floor since we were there (thank goodness..for so many reasons)!! It was beautiful! The colors were so soothing, bed spaces were further apart, and the entire area was much more quiet (maybe because we weren't there :) ) . As Travis noted, it didn't sound like a casino with all of the machine's beepers going off!

It was WONDERFUL to see Grayton's nurses, Angela and Jenny. I'm blessed to see Angela periodically but we haven't seen Jenny since Grayton's Angel day. They both looked great and Jenny was glad to hear about Gray being on the way. Travis pointed out that they'd have to come see Gray when he was born because we are not going to coming to Children's (oh God, please don't led us there again!).

I'll post other pictures later.

Love y'all!
Leigh

One year ago today....

One year ago today, we found out we'd be having Grayton on the 9th (which was a Friday) via scheduled C-Section. Little did I know what her coming into the world (she wasn't diagnosed with CDH until birth) would bring…both good and bad. I miss her each and every day. I was just thinking yesterday (not to sound ungrateful) that I kind of wish we were expecting a girl and the words came to me out of nowhere – "God doesn't give me what I want….He gives me what I need." I truly felt like He was speaking to me and a peace just came over me.

While no baby will ever replace Grayton, I just pray I've had my "special" child and He'll bless Gray to be whole and healthy. Before finding out what we were having, deep down I knew it was a boy. I think it's God's way of preparing me for the news of baby boy.

Friday is Travis and my anniversary! Saturday is Grayton's celebration (I'm really looking forward to it). Travis seems to think I'll have a harder time with her Birthday than I realize. I just pray God will give me the strength to make it through the day and concentrate on the many blessing we've received because of Grayton! I know her short life was for a purpose....it seems as if every day something good happens because she was born and went to Heaven.




BTW: Amy - thanks for the words to describe my thoughts!

CDH Babies - Prayer Requests

The following CDH (congenital diaphragmatic hernia) cherubs are on their way here. Please keep them and their families in your prayers!

Daisy Moore – Due ?
Amy Marie Meyers – Due ???
Basile Gibeaux - Due 2009-03-02
Nicolas Lesende - Due 2009-04-02
Piper Brooklyn Waddell - Due 2009-04-07
Jon Lee S. - Due 2009-04-11
Andrew Lee Whitten - Due 2009-04-17
Gabriela Monteiro - Due 2009-05-14
Avery Mae Keirsey - Due 2009-05-15
Baby Porretta - Due 2009-06-09
Giavanna Digregorio - Due 2009-06-12
Baby Clarketimmins - Due 2009-06-15
James Reeve 2009-06-15
Cameron Zane Redmon 2009-06-20
Baby Price - Due 2009-06-21
Eli Camden Harvey - Due 2009-06-24
Baby Slager - Due 200907-02
Gabriella Morgan Groenewald - Due 2009-07-05
Baby Brogden - Due 2009-07-06
Kamryn Hope Studdard - Due 2009-07-08
Jacob Thomas Zimmerman - Due 2009-07-18
Blake Francis Lapierre – Due 2009-07-20
Emma Ballard – Due 2009-07-31
Xavier Marcus Mumaw – Due 2009-08-02
Baby Hubbard – Due 2009-08-07
Ireland Rose B - Due 2009-08-23
Jonathan Louis Moehl - Due 2009-09-13

Ultrasound

He has a full name!

Gray (after Grayton) Kennedy (my middle name from my paternal grandmother's maiden name) Creekbaum

I said to Travis, "If Gray's got to have the name "Creekbaum" for the rest of his life, then he's going to have something from my side of the family." (sorry, Grandpa) Thankfully, he agreed.

Thank you to everyone who sent prayers and words of encouragement not only for Gray, but also for Travis' quick recovery. He seems to be doing better. He received some strong shots, a Z pac, as well as an antibotic, Avelox, used to treat pnuemonia.

In between his coughs, we decided on the name Gray Kennedy Creekbaum! At least he can share Grayton's unisex looking monogrammed things because they have the same initals!

Love you all!
Leigh, Travis, Ace, Allie, Karleigh (our 4 legged children) and 'baby Gray'